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Orphanet website UK entry point

Orphanet United Kingdom
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About Orphanet UK and PHE

Public Health England (PHE) hosts Orphanet-UK. PHE is an operationally autonomous executive agency of the Department of Health. It exists to protect and improve the nation's health and wellbeing, and reduce health inequalities. PHE achieves these through advocacy, partnerships, world-class science, knowledge and intelligence, and the delivery of specialist public health services.

 

Under the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS), Orphanet UK operates to partly fulfil PHE's commitments to UK Strategy for Rare diseases -The UK Strategy for Rare Diseases 

 

The UK Implementation Plans: 

Implementation Plan 

 

Implementation Plan England 2019  

 

Implementation Plan Scotland 

 

Implementation Plan Wales 

 

Implementation Plan NI

 

 

 

The NCARDRS was launched on 1st of April 2015, as a resource to support patients, clinicians, service delivery, commissioning and public health. The service looks to engage patients, charities and public, therefore the documents below provide details on the importance of the service, the benefits and options for patients: 

 

NCARDRS under Public Health England

 

NCARDRS-vision-statement-.pdf

 

 

NCARDRS Patient Leaflet

 

 

Please contact us through Orphanet-UK@phe.gov.uk





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Legal noticeContact us — Last updated on: 21-04-07