|Orphanet international services|
|This page presents the news, events and documents of national significance.
To access all information on rare diseases, orphan drugs and expert services visit the main Orphanet portal (www.orpha.net)
Public Health England hosts Orphanet-UK. PHE is an operationally autonomous executive agency of the Department of Health. It exists to protect and improve the nation's health and wellbeing, and reduce health inequalities. PHE achieves these through advocacy, partnerships, world-class science, knowledge and intelligence, and the delivery of specialist public health services.
Under the new National Congenital Anomaly and Rare Disease Registration Service (NCARDRS), Orphanet UK operates to partly fulfil PHE's commitments to UK Strategy for Rare diseases - UK Rare Disease Strategy
The NCARDRS was launched on 1st of April 2015, as a resource to support patients, clinicians, service delivery, commissioning and public health. The service looks to engage patients, charities and public, therefore the documents below provide details on the importance of the service, the benefits and options for patients:
Please do contact us through Orphanet-UK@phe.gov.uk